不能控制其发作的癫痫猝死(SUDEP)是导致年轻人死亡的主要原因。每年超过千分之一的癫痫患者死于猝死,如果是不受控制的癫痫发作,风险会增加一百五十分之一。一种普遍恐惧的意识和持续受到的歧视导致太多的人隐藏自己的癫痫病情而没有接受持续治疗或寻求更有效的治疗方法。这增加了他们癫痫猝死的风险
癫痫基金会帮助机构决心改变这种状况,开展一个创意的宣传活动,鼓励人们寻求最佳的癫痫发作和癫痫发作控制和教育他们自己和他们的家庭以及他们如何可以减轻癫痫猝死的风险。此外,这个活动应该邀请更广泛的医疗保健社区讨论SUDEP,明白不接受持续发作的重要性,并寻找一种更有效的治疗方法。具体(https://www.innocentive.com/ar/challenge/9933717)如下
TAGS: Global Health, Business/Entrepreneurship, Life Sciences, Scientific American, Ideation
AWARD: $15,000 USD | DEADLINE: 7/13/15 | ACTIVE SOLVERS: 12 | POSTED: 6/09/15
Sudden unexpected death in epilepsy (SUDEP) is the leading cause of death in young adults who have epilepsy and cannot control their seizures. Each year, more than 1 out of 1,000 people with epilepsy die from SUDEP, and, if seizures are uncontrolled, the risk increases to more than 1 out of 150.
A widespread lack of awareness and ongoing fear and discrimination lead too many individuals to hide their epilepsy and to accept ongoing seizures instead of seeking out more effective treatments. This increases their risk of SUDEP.
The Epilepsy Foundation SUDEP Institute is determined to change this and is challenging Solvers to come up with ideas for a creative advocacy campaign that encourages people with seizures and epilepsy to seek optimal seizure control and to educate themselves and their families about SUDEP and how they can mitigate its risks. In addition, the campaign should invite the broader health care community to talk about SUDEP, understand the importance of not accepting ongoing seizures, and pursue all effective treatment options.
Can you help us to demystify seizures and epilepsy, and empower people with epilepsy?
This is an Ideation Challenge with a guaranteed award for at least one submitted solution.
[更多]